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Jazmin Farr, an Adelaide native, is seeking money to cure Complex Regional Pain Syndrome, the most excruciating illness in the world.

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A 12-year-old Adelaide girl who is suffering from the most excruciating illness in the world has been fundraising for her own medical care for nearly six months.

Jazmin Farr was diagnosed with Complex Regional Pain Syndrome, or CRPS, at the age of eight after suffering a foot injury while playing on a trampoline.

The most painful ailment according to the McGill Pain Index is CRPS, a neurological illness that is ranked higher than natural childbirth.

Jazmin said that she felt as though her “whole body was on fire,” and that she was in excruciating pain even when doing relatively simple actions like shifting a blanket.

She frequently has excruciating swelling, bruises, discoloration, exhaustion, insomnia, and is easily startled by sudden temperature changes.

Jazmin’s condition has significantly worsened due to a second injury, according to her mother Mandy Farr, who spoke to Daily Mail Australia.

“Jazmin’s full-body CRPS was triggered by another injury that occurred last year,” the source stated.

Jazmin has been pleading for this excruciating agony to end on a regular basis. She has had innumerable days when she is no longer able to handle it on a mental and physical level.

“The moniker “suicide disease” is a fitting one for this terrible illness.”

There is no recognized cure for CRPS, which affects about 5,000 people in Australia. Treatment choices are restricted.

The Spero Clinic in America is the only hospital in the world that has been able to address the underlying cause of CRPS without resorting to pain control.

Many patients have entered remission as a result of its highly effective strategy.

According to Ms. Farr, Jazmin may have “the only hope” at the Spero Clinic.

“Life with CRPS is incredibly unpredictable on a daily basis.” There will always be pain, even on a beautiful day. According to her, pain intensity varies minute by minute.

The Spero Clinic treats neurological diseases like CRPS with state-of-the-art tools and methods.

Unfortunately, because CRPS is not well-known or understood in Australia, there is very little treatment available.

“Spinal blocks, ketamine infusions, and stimulants are not exactly the best treatment options for anyone, let alone a 12-year-old child.”

However, the high cost of temporarily moving to the USA for therapy, as well as attending the clinic, have prevented Jazmin from seeking the life-changing treatment.

‘We have been fundraising for five-and-a-half months. It has been a lot of late nights and hard work to get to where we are at,’ Ms Farr said.

‘Our GoFundMe target is $200,000 and we’re currently at $136,400.

‘The funds will cover treatment, travel, accommodation, living away expenses and all medical costs that will be needed.’

Ms Farr said the generosity her family has received has ‘certainly knocked us off our feet, in the best way possible’ but their biggest comfort has been each other.

‘These past four years have definitely been the hardest thing we have ever had to go through. It has been filled with great heartache and pain,’ she said.

‘As a parent to sit and watch your child suffer day after day is something that no parent should ever have to endure.

“Our family’s bond has only grown stronger, allowing us all to get through this.”

The family hopes to give Jazmin the childhood she deserves by securing the next vacant slot at Spero Clinic as soon as they are able to raise $200,000 for it.

To raise money, we have held a lot of events and fundraisers. The generosity and support we have gotten from people has humbled and amazed us,’ Ms. Farr remarked.

“Throughout this trying time, people’s kindness, encouragement, and support have all had a positive and significant impact.”

“It means the world to Jazzy and the rest of our family that we are no longer alone on this isolating pathway.”

 

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